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	<title>Tania  Glyde &#187; hospital</title>
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		<title>Tania  Glyde &#187; hospital</title>
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		<title>Stroke Life &#8211; Eight weeks and counting&#8230;</title>
		<link>http://taniaglyde.com/2008/03/29/stroke-life-eight-weeks-and-counting/</link>
		<comments>http://taniaglyde.com/2008/03/29/stroke-life-eight-weeks-and-counting/#comments</comments>
		<pubDate>Sat, 29 Mar 2008 21:10:44 +0000</pubDate>
		<dc:creator>taniaglyde</dc:creator>
				<category><![CDATA[Life]]></category>
		<category><![CDATA[hospital]]></category>
		<category><![CDATA[recovery]]></category>

		<guid isPermaLink="false">http://taniaglyde.wordpress.com/?p=96</guid>
		<description><![CDATA[I can&#8217;t believe I&#8217;ve been sitting at home convalescing for over eight weeks now. I had a follow-up appointment with a neurologist last week. Apparently I&#8217;m doing well but, as far as I can see, there is still a bit of a way to go. I&#8217;ve got to wait another month before doing any exercise, [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=taniaglyde.com&#038;blog=2519600&#038;post=96&#038;subd=taniaglyde&#038;ref=&#038;feed=1" width="1" height="1" />]]></description>
			<content:encoded><![CDATA[<p>I can&#8217;t believe I&#8217;ve been sitting at home convalescing for over eight weeks now.  I had a follow-up appointment with a neurologist last week.  Apparently I&#8217;m doing well but, as far as I can see, there is still a bit of a way to go.  I&#8217;ve got to wait another month before doing any exercise, so I&#8217;m still doing the china doll thing.  In another life I might have gone and been one of those living sculptures that Paul Raymond used to get round the laws back in 50s Soho.</p>
<p>Actually,  it&#8217;s the other hospital, the one in North London where I&#8217;m having my blood tests, that&#8217;s totally doing my head in. It&#8217;s taken them nearly a month to get my address right, so they&#8217;ve lost my anticoagulant book twice now.   I have no record of my results and dosages, although I have kept notes in various places.</p>
<p>If that wasn&#8217;t enough, the woman who works at the clinic front desk is, frankly, a patronising cow, who shouldn&#8217;t be working in a public-facing job.  I was upset for several days after dealing with her on Tuesday, and I&#8217;m still considering making a complaint.  Blimey, what a little flower I am.  But you know what, I&#8217;ve had a bloody stroke and I expect to be treated with just a bit of, like, respect &#8211; or at least niceness.</p>
<p>But I&#8217;ve come to the conclusion that most stroke services are simply not equipped to deal with the needs of younger sufferers &#8211; (not going to get into the &#8216;Victim&#8217; versus &#8216;Survivor&#8217; thing) &#8211; despite the fact that, (according to my neurologist; I hope I&#8217;ve remembered right), 25% of people who get them are under 60.   They expect all patients to be old, doddery, and incapable of thinking for themselves, and perhaps supported by a band of relatives or social workers ticking forms on their behalf.  The nurses talk to you like a child some of the time and it&#8217;s baffling.</p>
<p>If I ever get a progressive illness, I <i>dread</i> having to deal with the NHS, I really do.  I think I would turn into a crazy shouty person, like the woman I saw while waiting to see the neurologist the other day.  I think she was attending the MS clinic, and she had found her notes lying on a table and was reading them.  One of the nurses told her off and said it was against protocol to let her do that.  &#8216;I just want to see what&#8217;s going on with the treatment for my illness!&#8217; she snarled.  I don&#8217;t blame her.  She was about my age, and was walking with a stick, and didn&#8217;t look well at all.</p>
<p>Oh god, enough dread and irritation.  Come with me and let&#8217;s live in the moment.</p>
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